It's been a busy week. I am cookie mom for Reagan's Daisy troop--which means I am in charge of everything cookies. Finally got the orders in for the pre-orders so now I've got to get everyone geared up for the site sales.
Camden has been waking up in the middle of the night lately and crawling into bed with us. That would be fine except he is one of those flailing around sleepers. Not sure what is causing this but hoping it ends soon.
Kalleigh is having her IFSP (Individualized Family Support Plan) updated next month so all the therapists are doing their reviews for it. It's nice to know I am not the only one that hates these. I am with K every day. I know where she is developmently. I do my research. Believe me, I know. And you know what--I think she is doing great. I see progress. I am very proud of her. I see how hard she works to do things. I don't see a child with Down syndrome. I just see Kalleigh. We are who we are. I hate these reviews. I hate being told by a person who sees her a couple of hours a month where she is in regards to 'typically developing' kiddos. Thank you for telling me my 2 year-old child is in the 6-9 month range for speech. 12 month range for other skills. I DON'T CARE! I wish I knew why they feel this need to force these numbers on us. When I hear these numbers it feels like I got punched in the stomach. When I told one that I'll read the report if and when I feel like reading it, she reacted like I was a mother who didn't care about her child. Then she tried to reassure me by saying "Well Kalleigh has such a love for life". Once again...I don't need your input. I am the one who knows my kid. I don't need you telling me about her. So anyway, after crying in my car for awhile after her therapies, we made our way home. I dread when the school system takes over her care.
On a different note, K is absolutely obsessed with books lately. She is constantly looking through every book she can get. Bringing it to me to read. She listens in for bedtime stories of her sister and brother, gets her own story, and still throws a fit when we are done reading. I mean a falling down, screaming, stomping feet fit. Crazy.
Camden has been waking up in the middle of the night lately and crawling into bed with us. That would be fine except he is one of those flailing around sleepers. Not sure what is causing this but hoping it ends soon.
Kalleigh is having her IFSP (Individualized Family Support Plan) updated next month so all the therapists are doing their reviews for it. It's nice to know I am not the only one that hates these. I am with K every day. I know where she is developmently. I do my research. Believe me, I know. And you know what--I think she is doing great. I see progress. I am very proud of her. I see how hard she works to do things. I don't see a child with Down syndrome. I just see Kalleigh. We are who we are. I hate these reviews. I hate being told by a person who sees her a couple of hours a month where she is in regards to 'typically developing' kiddos. Thank you for telling me my 2 year-old child is in the 6-9 month range for speech. 12 month range for other skills. I DON'T CARE! I wish I knew why they feel this need to force these numbers on us. When I hear these numbers it feels like I got punched in the stomach. When I told one that I'll read the report if and when I feel like reading it, she reacted like I was a mother who didn't care about her child. Then she tried to reassure me by saying "Well Kalleigh has such a love for life". Once again...I don't need your input. I am the one who knows my kid. I don't need you telling me about her. So anyway, after crying in my car for awhile after her therapies, we made our way home. I dread when the school system takes over her care.
On a different note, K is absolutely obsessed with books lately. She is constantly looking through every book she can get. Bringing it to me to read. She listens in for bedtime stories of her sister and brother, gets her own story, and still throws a fit when we are done reading. I mean a falling down, screaming, stomping feet fit. Crazy.
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